First SymptomsWhat were the first MG symptoms you experienced? How long did they persist before you were diagnosed? How long until you felt...reactions11repliesSymptomsDiagnosisAwareness
What are the early symptoms of Myasthenia Gravis, and how can they be managed effectively?Myasthenia Gravis (MG) often begins with symptoms that may seem mild but can gradually worsen. Early signs include muscle weakness, especially in...reactions1replySymptomsCaregivingAwareness
Have you noticed any toe changes like curling or stiffness?Have you noticed any changes in your toes, like curling or stiffness, either before or after your diagnosis of Myasthenia gravis? How...reactions1replySymptomsSide EffectsAwareness
Mr Tony ArnoldThe first time that I realised something was wrong was when I heard a colleague fall off of his heavy goods wagon...reactions3replies
Constant RecurrenceI have still a hard time on occasionally right eyelid dropping, itching with astigmatism especially during driving, double vision is quite okay...reactions1reply
Doing Great…..except for my feet!I was diagnosed in 2021 just about a month after my first covid vaccination. My Neurologist is managing the illness very well...reactions1reply
Diaphoresis, anyone?Two medications I take - Pyridostigmine and Levothyroxine - are known to have excessive sweating as side effects. This has been getting...reactions1reply
Hospital Visit for CardiologistWell been in and out of hospital and a&e but this time I had been in hospital for about 5 days and...reactions1reply
Living with someone who has MGMy husband was diagnosed with MG when he was 23 with all classic sighns of choking weakness dropped eyelids he then had...reactions3replies
Older vs newer more targeted therapiesWhat are anyone’s experiences in changing over from older immunesupressants to the newer compliment inhibitors ( Solaris or ultimoris or ziucoplan )...reactionsreplies