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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Has anyone had a transternal thymectomy?

I had a transternal thymectomy about 14 weeks ago. Whenever I lay down then get up, seems like my chest sticks to...

Leg weakness

I have MG, but my main symptoms are leg weakness and fatigue. Double vision is much better after Thymectomy in 2017. I...

Has anyone here had a dual diagnosis of Myasthenia Gravis and Arnold Chiari?

I know this kind of diagnosis is quite rare, or it was when I was diagnosed in 1988. The symptoms are similar...

Did You Massage Your Thymectomy Scar?

Many hospitals and health institutions recommend scar massaging a few weeks post-operation. Different massaging methods may be suggested, but they all have...

How long does nerve pain last on chest after thymectomy?

I just want to know how long will I have the nerve/muscle pain since surgery? I can’t stand anything touching the incision...

COVID and gMG

I started getting double vision about one month after I took my fifth COVID vaccination, has anyone else tied their initial symptoms...

Do You Have MuSK or LRP4 Antibodies?

Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause...

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and...

How does the heat affect you?

Yesterday I took a walk, the distance I've been able to work up to since starting Mestinon a few weeks ago. Nowhere...

Mestinon stop working

I’ve had myasthenia since 1987. Last few years Mestinon doesn’t help as much. Anyone else ???...

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