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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Healthcare team

…Looking for MD whose primary specialization is MG..seen too many who were useless. I live on Long Island, NY. Anyone out there who can help me? Thank you!...

MG testing complicated by pre-existing conditions

Hello everybody I just registered here today to ask for advice on testing for MG when there are pre-existing genetic conditions and autoimmune conditions with overlapping symptoms. I will try...

Plasmapheresis cessation

My wife was recently diagnosed with MG and had a thymectomy two and a half months ago. My expectation was that she would be on medication to control symptoms from...

Does Prednisone help with fatigue?

Hello, Was diagnosed with MG last month. I am trying to be ultra conservative with my approach. So far I have been taking Mestinon 3x per day as a muscle...

Mother newly diagnosed with MG

Hi everyone, I am new to the forum and are from the Middle East, and looking for support and feedback. We My mother is 70 years old and she was...

Reference ranges make no sense

I had a myasthenia gravis work up from LabCorp and the reference ranges do not match the reference ranges that I was able to find on Mayo clinic's website here's...

Needing help understanding Test Results

Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...

Seronegative MG

Good Morning! I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps. Nervous about...

Sleep hallucinations

I was diagnosed with MG back in 2016. I’ve had a thymectomy and I’ve been on IVIG infusion ever since. I know that there are several side effects from MG...

Vitamin D

I have read that a high dose of Vitamin D has a good effect on persons suffering with MG although not proven? Has anyone have any advise on this or...

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