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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it?...

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or...

What is Leg systoms

I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was...

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

anyone get glasses for your double vision?

My opthamologist who diagnosed my MG wants to stay involved in my treatment, he was saying he would do botox on my...

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