Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice...

Getting a handle on MG (or trying)

I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit...

Feeling Overwhelmed

I have been diagnosed for 2 years now. On prednsione, mestonin and cellcept. gabapentin and nortriptyline, IVIG monthly. Leg fatigue during the...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...

Excessive sweating (Hyperhidrosis)

I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous...

Weight gain, anybody?

I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and...

What came after mestinon & steroids for you?

Did you move from pyridostigmine (60mg) and Prednisone (30mg or so) right to IVIG as your next treatment? Or if not, what...

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