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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Highest Steroid Dose You’ve Been Prescribed

What is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it?...

Did Your MG First Symptoms Happen All at Once, a Crisis?

A Myasthenic Crisis is the most severe event Myasthenia gravis can cause. Although it can vary, a crisis typically involves weakening multiple...

Do You Have a Preference of Older or Younger Doctors to Treat MG?

Do you prefer a young or older healthcare professional to treat your MG? Age by no means determines how much knowledge or...

Potassium

My readings tell me that low potassium can affect one’s muscles. Once upon a time I went in for a kidney stone...

Ivig treatment at home

I have been approved by Medicare for IVIG treatments at home but was informed by Optim Infusion there is a $4239.50 out...

Soliris (Eculizumab) Outcome & Side Effects

Eculizumab (Soliris®), https://myasthenia-gravis.com/biologics, is a Myasthenia gravis treatment approved for generalized myasthenia gravis (gMG)(https://myasthenia-gravis.com/generalized) & anti-acetylcholine receptor (AChR) antibody-positive (https://myasthenia-gravis.com/causes). Have you...

Blood tests are negative but have symptoms

I have many of the symptoms of MG- loss of muscle strength around my mouth, sometimes trouble chewing/swallowing /drinking water some slurring...

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective...

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