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Read conversations, start a discussion, and connect with others about myasthenia gravis.

When meds don't work

I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...

Newbee found while in MG crisis ccu stay

Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...

MG Patient Registry

https://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...

Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which...

Propel Clinical Trial

Wondering if anyone is participating in the Propel clinical trial and your results....

IVIG allergic reaction

Is anyone experiencing an itchy, bumpy rash on palms of hands and in between fingers following IVIG? Any info would be appreciated!...

Huperzine-A

I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with...

MG and PD

I happen to have MG and PD at the same time. It's sometimes hard to determine which to blame for some symptoms...

Legs problem

I am 83 years old with mg. I am having trouble walking....

Return of diplopia

When I was diagnosed 10 years ago, my initial symptom was first "scrambled" vision then double. It cleared very quickly (2-3 days)...

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