Taking pyridostigmine After 2 yrs of stroke like symptoms, blurry vision, low o2, intolerance to heat, trouble chewing and swallowing...I have a diagnosis of...reactions17replies
MG TerminologyI bet we all remember the first few years after being diagnosed with Myasthenia gravis and constantly finding new MG-related terms we...reactions2repliesDiagnosisAwarenessNewly Diagnosed
Has anyone used imaavy infusionI am 78. I have had MG since 1998. I presently take prednisone and IVIG infusion. I have taken prednisone since 2000...reactions3repliesAutoimmune Diseases
Are specific vaccinations safe with MG? We have a new granddaughter and my son has expressed an interest that I get the new fall Covid vaccine and flu...reactions5repliesAutoimmune Diseases
What was the first treatment your doctor prescribed for MG?Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...reactions237replies
What are your go-to home hacks for conserving energy with MG?From using adaptive tools in the kitchen to reorganizing daily essentials so they’re within easy reach, we all develop our own strategies...reactions5repliesAssistive DevicesTips & Advice
Congenital myasthenic syndromeI'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...reactions10replies
MG Anti MuskMy father's ventilator weaning is not happening since 45 days. Ivig just completed...reactionsrepliesAutoimmune Diseases
Side Effects From Pyridostigmine(Mestinon)Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the...reactions19repliesSide EffectsTreatmentDiagnosis
Just Diagnosed 9 days ago.any advice on bowel management /frequency /diet on Montinon? I now wear depends as a precautionary measure, as i always have urgency,especially after a meal sometimes during sleep.i am tired of...reactionsreplies