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Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG without Excerbations

I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to...

Myasthenia crisis???

After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my...

Extreme heaviness and throbbing pain in lower legs

I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my...

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned?...

What changes have helped you feel more fulfilled as you navigate MG?

Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate...

General Myathenia Gravis

When I am ready to retire for the evening and I take off my shoes my right foot will curl to the...

Vivgart

I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

Difference with ibuprofen

Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general...

Potassium

I read where magnesium is not good to take with MG, what about potassium. I do eat bananas....

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