One word to describe the past monthDescribe how you have felt this past month with one word....Reactions0reactionsComments1 repliesSymptomsAwarenessFriends & Family
Severity of symptomsMy husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...Reactions0reactionsComments2 repliesNewly DiagnosedSymptomsDiagnosis
problem with difficulty urinatinggood evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...Reactions0reactionsComments5 repliesAutoimmune DiseasesDiagnosisSymptoms
Symptoms of MGI was diagnosed after 3 months of seeing Drs any so many tests...I have had MG for 4 months now and i am taking Pyridostigmine and prednisone...I have had all...Reactions0reactionsComments5 repliesSymptoms
Heart IssuesI am wondering if anyone else with MG has experienced any heart related issues. Recently my doctor found an abnormality in my EKG relating to electrical conductivity. This wasn't there...Reactions0reactionsComments12 repliesSymptoms
Is anyone else on azathioprine?I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...Reactions0reactionsComments4 repliesMuscle WeaknessSymptomsTreatment
NEW APPROVED MG TREATMENT for Gmg - Vyvgart HytruloSuper exciting!! The FDA has just approved Argenx’s subcutaneous injection (given in the fatty tissue just under the skin) formulation of efgartigimod, called Vyvgart Hytrulo (efgartigimod alfa and hyaluronidase-qvfc) to...Reactions0reactionsComments3 repliesTreatmentGeneralized MGSymptoms
Equivocal Result on MG blood testHi everyone. I have not been diagnosed with anything as of yet but I certainly have something I'm going through and wanted to run my symptoms by you. Starting about...Reactions0reactionsComments4 repliesSymptoms
Exhaustion?Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...Reactions0reactionsComments3 repliesMuscle WeaknessSymptoms
Highest Steroid Dose You’ve Been PrescribedWhat is the highest steroid dose you have been prescribed for Myasthenia symptoms? Did a doctor order this after you were in a crisis or significant flare? Have you been...Reactions0reactionsComments19 repliesTreatmentCrisisSymptoms