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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Prednisone for ocular MG

Mestinon helps, but I seemingly have to take a lot of it to make a big difference. I would like to hear...

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days"...

MRI scans/thymectomy in the 1980s

Hi, I have MG and was diagnosed with it in 1984 at the age of 15. I had a thymectomy in 1985...

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Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses...

HRT and MG

Hello! I am in my mid 40's, and my MG has always been exacerbated 3 days before my cycle starts, I've never...

Prednisone not for me

I was not able to take Prednisone. We tried for a year and I was so sick that my doctor weaned me...

Does anyone else in your immediate family have MG?

After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help...

Weight gain, anybody?

I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and...

Emergency room- advocating for your MG and communicating with staff

Have you had an emergency room visit since having MG? If you were unaware, many drugs can trigger or worsen MG symptoms...

IVIG Infusion for 5 days straight

That was a long week. Anyone have symptoms of yellow/brown colored urine after the 5 days of IVIG Infusion ? How to...

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