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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Pyridostigmine availability

I take 180 mg of pyridostigmine ER twice daily, but lately I've had trouble finding a pharmacy that has it. They all...

IVIG Side Effects

IVIG delivers healthy antibodies to improve an MG flare or crisis but can cause side effects. Headaches, chills, dizziness, and fluid retention...

Slurred speech

Does anyone have slurred speech feeling that your tongue is numb or burning? If so, what was prescribed to help?...

Possible misdiagnosis

Twelve years ago I was diagnosed with MG after nearly 3 years of going from doctor to doctor trying to find one...

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...

Prednisone for ocular MG

Mestinon helps, but I seemingly have to take a lot of it to make a big difference. I would like to hear...

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days"...

MRI scans/thymectomy in the 1980s

Hi, I have MG and was diagnosed with it in 1984 at the age of 15. I had a thymectomy in 1985...

HRT and MG

Hello! I am in my mid 40's, and my MG has always been exacerbated 3 days before my cycle starts, I've never...

Prednisone not for me

I was not able to take Prednisone. We tried for a year and I was so sick that my doctor weaned me...

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