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Read conversations, start a discussion, and connect with others about myasthenia gravis.

It lies in the gut

MG patients have been found to have a disequilibrium of bacteria in their gut, with too little of T-reg cells. There is...

IVIG treatment

After 5 IVIG sessions I developed a violent allergic skin reaction to the 6th one and was forced to give them up...

Vyvgart

I have been on Vyvgart infusions since 2024. Prior to that I had too many flare ups and 2 major crisis of...

Is there anyone out there that has had a thymectomy after the age of 50 with success? Please tell me you’re good...

I am 51, I have been referred to a surgeon for a thymectomy. My MG specialist says nooooo due to my age...

Knee Pain

Do you experience knee pain or discomfort? Knee pain, while not one of the most commonly reported symptoms of myasthenia gravis (MG)...

Is this normal with OMG

I started having double vision episodes a year and a half ago. Neuro checked me for MG. Bloodwork was normal ace receptors...

Help with prednisone

Neurologist wrote Rx for prednisone if I have an upcoming busy engagement, no dosage, just take as needed. What do you all...

How old I was when I was diagnosed

I was 36 years old and it was 12/16/2006, my oldest son’s 16th birthday....

Muscle pain

I was just diagnosed with MG in February and my initial symptoms were difficulty chewing and some fatigue. I have managed fairly...

Headache with Mestinon

I am experiencing stomach cramps , diarrhea and headaches with 60 mg of Mestinon. I’ve read about stomach cramps and diarrhea but...

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