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Read conversations, start a discussion, and connect with others about myasthenia gravis.

MG without Excerbations

I believe I’ve had this since 2017 but it didn’t bloom until September 2023. It took me to September 3, 2024 to see a Neurologist. Dr ordered tests and the...

Myasthenia crisis???

After an extremely busy weekend visiting family, I woke feeling slightly unwell. Usually if I overdo things I get flares of my symptoms: off-balance, tired, pain through most of my...

Extreme heaviness and throbbing pain in lower legs

I am about 12 days from receiving my semi-annual infusion of retuximab. I am experiencing heaviness and a throbbing pain in my lower legs. This is not a cramping. Has...

Does anyone have an issue with floaters

I recently went the opticians because I suddenly had flashing lights and floaters in both my eyes,I was told it was a vitreous detachment due to age(I'm 72) and no...

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned? How is it impacting your life if you...

What changes have helped you feel more fulfilled as you navigate MG?

Have you made changes to your life since your MG diagnosis? What changes have helped you feel more fulfilled as you navigate MG?...

General Myathenia Gravis

When I am ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position...

Vivgart

I got diagnosed aug23 with a crisis. Had another severe crisis april2024. 10 days in iCU. Started vivgart in May. It's been only 6 weeks and I'm going backwards already...

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been taking them? What is something you wish someone...

Difference with ibuprofen

Has anyone noticed any symptom improvements with just ibuprofen or Advil/motrin. My ptosis noticeably improved with ibuprofen and some of my general weakness although subtle. I don't take it now...

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