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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mestinon in NYC

Hi all, I’ve been prescribed Mestinon 60mg and I’m having trouble finding it at any pharmacy. Walgreens has none in stock in...

Ptosis

The more I look at my eyelids sometimes I wonder. Have people noticed a difference with how long they need to rest...

Thymectomy

Hello, I know there's previously been discussions about this from various people in various forms but couldn't find anything for this year...

Feels like electric shocks

I'm tired, but I push on. Just recently I have been getting sensations like electric shocks, going through some of my toes...

I have Mystaina Gravis but I really don't know what the symptoms

I was diagnosed with Mystaina Gravis in 2018 along with Lupus , Rhumitoi Arthritis, Neuropathy, fibromyalgia, I had my Thyroid Radiated and...

Eye brow droop

Does anyone get eyebrow droop with ocular mg especially when hot and certain types of lighting?...

Unsuccessful Prednisone Taper

Has your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper...

Myasthenia gravis and adverse reaction to the meningococcal vaccine?

Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo...

Beginning to exercise after thymectomy

Beginning to exercise after having a thymectomy can be scary! Exercising with MG already is daunting for many as it means accommodating...

Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq?

Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq?...

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