Seronegative MG...I recently was diagnosed with MG. Going next week to have a scan of the Thymus and discussion after with MG Neuro on the next steps....Reactions0reactionsComments3 repliesTips & AdviceSeronegative
Struggling with myasthenia gravis ...I have been diagnosed with MG since 2014. I have been struggling with it in refugee camp without proper medication....Reactions0reactionsComments13 repliesCoping
Numbness and tingling in limbs...My PCP diagnosed it as tennis elbow....Reactions0reactionsComments3 replies
Anyone else have MG and idiopathic transverse myelitis...Last month I was diagnosed with seropositive MG after developing weak lip and tongue muscles....Reactions0reactionsComments3 repliesDiagnosisAutoimmune DiseasesNewly Diagnosed
MG and Covid...I have recently been diagnosed with a mild case of MG, but it seems to me that many if my MG symptoms look very much like Covid symptoms....Reactions0reactionsComments1 repliesCoping
General Myathenia Gravis...ready to retire for the evening and I take off my shoes my right foot will curl to the left like it is paralyzed in that position because I have...Reactions0reactionsComments5 repliesAutoimmune Diseases
Financial Assistance Available Through The National Organization for Rare Diseases...programs to help individuals living with rare diseases: Obtain medication Receive financial help with insurance premiums and co-pays Get diagnostic...Reactions0reactionsComments2 repliesCostInsurance & DisabilityResearch & Clinical Trials
Nightly cramps after fluoroquinolone antibiotics...Although I was never actually diagnosed with anything, I did my own research....Reactions0reactionsComments0 repliesAwareness
MG and Homeopathy...Hi, I'm very freshly diagnosed and trying to educate myself on the illness. Very grateful for this group and for technology, I live in Greece.....Reactions0reactionsComments3 repliesTreatment
Cane Use...I was 'sort of' diagnosed with MG by an ophthalmologist who specialized in neurological eye issues -- awaiting blood test results for the Mayo Clinic....Reactions0reactionsComments3 repliesAssistive DevicesCopingAwareness
Mouth and scalp ...I'm 52 was diagnosed at 37 and have a strange variety of symptoms like burning mouth and scalp syndrome can't eat watermelon in large portions if I do...Reactions0reactionsComments2 replies
Any side effects of long term IVIG treatment? ...I got diagnosed with Thymoma in Dec 2020. Had surgery in February 2021....Reactions0reactionsComments1 replies
Exercise with Myasthenia Gravis...Have been diagnosed with MG for 11 years. Strongest symptoms showed 2 years ago and hospitalized me....Reactions0reactionsComments7 repliesExercise
Using Azathioprine long term for MG...Was diagnosed with MG at 65… Started with Mestinon and Prednisone. Ocular only..for 4 years took Pyridostigmine maybe twice a year mild flare ups....Reactions0reactionsComments0 replies
I was born in 1956 . There was something wrong with my muscles...my brother had it too......We were diagnosed with MG at the Univercity of Chicago....Reactions0reactionsComments3 repliesCoping
Pyridostigmine...I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day....Reactions0reactionsComments7 repliesGeneralized MGDiagnosis
The State of Vision Health...The introduction of advanced diagnostic tools and treatment options has improved the quality of care, allowing for more personalized and effective interventions...Reactions0reactionsComments1 repliesVision
Mg and asthma...Mg was diagnosed and asthma treatment discontinued. I had chest infection over Xmas and was told I was asthmatic but mg also played up....Reactions0reactionsComments10 repliesGeneralized MGHealthcare Team
General questions ...I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week....Reactions0reactionsComments1 repliesDiagnosisHealthcare Team
Working Full-Time...I was diagnosed in November so I am virtually new....Reactions0reactionsComments8 replies
