When meds don't work I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...reactions8replies
Newbee found while in MG crisis ccu stay Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...reactions17repliesCrisis
MG Patient Registryhttps://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...reactions1replyAwarenessCopingResearch & Clinical Trials
Tips for breathingMost of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which...reactions5repliesGeneralized MG
Propel Clinical TrialWondering if anyone is participating in the Propel clinical trial and your results....reactionsreplies
IVIG allergic reaction Is anyone experiencing an itchy, bumpy rash on palms of hands and in between fingers following IVIG? Any info would be appreciated!...reactionsreplies
MG and PDI happen to have MG and PD at the same time. It's sometimes hard to determine which to blame for some symptoms...reactions2repliesTreatmentVision
Return of diplopia When I was diagnosed 10 years ago, my initial symptom was first "scrambled" vision then double. It cleared very quickly (2-3 days)...reactions7repliesVision
What is a treatment that is safe for mg patients that contract Covid 2025Diagnosed several days ago with Covid (2025) I would like to know some treatments that are safe for people with mg. My...reactions2repliesHealthcare Team