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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy...

Needing help understanding Test Results

Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating...

Do positive blood tests later show no sign of gMG?

My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after...

LRP4 Question

I have the LRP4 type so unfortunately the treatment options are very limited. Most treatments are geared towards the ACHR type and...

Refractory AChR+ gMG Flares: How Long Can They Last?

Have had a very bad flare since exactly April 1, 2025 (no joke) and it still shows no sign of going away...

Neurologist concerns? I have them.

I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...

In remission from GMG by fixing diet

Developed GMG symptoms - double vision, drooping eyelid, loss of strength / endurance, etc. - in late 2003 when I was in...

How do you prepare for travel?

Now that it's summer time, it's also vacation time for a lot of people. I myself just cam back from a mini...

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