Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 2 days ago

Leg Vibrations

Diagnosed with MG in 1989 and have had mild fluttering in my legs over the years. For the past year I have...

Active 2 days ago

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

Active 3 days ago

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned?...

Active 4 days ago

Surgery for your eyes

Has anyone gotten surgery on the eye muscles because there isn't enough prism to take care of double vision?...

Active 5 days ago

Huperzine-A

I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with...

Active 7 days ago

Remission

Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...

Active 7 days ago

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Can PCP Rx Mestinon? Suspected MG

Hello! I am new here and I’m so alone with this so forgive me if this is long. I was wondering if...

Dry cough

I have had a dry cough forever! Gone thru every test you can imagine, nothing! I do not and have never smoked...

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