Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon MG just miraculously dissaperaing like remission...reactions2repliesDiagnosis
Medication side effectsAre you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...reactions32repliesTips & AdviceTreatment
New treatment (experimental?) Rystiggorozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...reactions3repliesTreatment
Headaches or migraines as a primary or persistent/main symptomHi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...reactions8repliesResearch & Clinical TrialsAwarenessSymptoms
Remission Has anybody ever heard of a complete remission with all medication being stopped (even Mestinon) and neuroligist confirming that no trace of...reactions9replies
Do You Have a Caregiver?Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice...reactions37repliesCaregivingNewly DiagnosedHealthcare Team
Getting a handle on MG (or trying)I have been having fairly frequent flairs, due to stress, summer heat, and just too much exertion. And I have to admit...reactions7repliesCopingSymptomsTreatment
Feeling OverwhelmedI have been diagnosed for 2 years now. On prednsione, mestonin and cellcept. gabapentin and nortriptyline, IVIG monthly. Leg fatigue during the...reactions2repliesSeronegativeMuscle WeaknessGeneralized MG
Is a wheelchair in my future?I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...reactions8repliesAssistive Devices
Excessive sweating (Hyperhidrosis)I've been having a somewhat embarrassing problem. I've always sweated rather heavily when exercising, but since developing MG it's gone to ridiculous...reactionsrepliesExerciseWeatherSymptoms