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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Pyridostigmine

I was just diagnosed about a 5 weeks ago, doc put me on 60mm of Pyridostigmine 3x a day. I feel no...

Treatment

Doc is looking @ Imuran or CellCept & IVIG for me. Anyone have any insight or experience with these treatments? *sounds like...

Struggling with myasthenia gravis

Hello friends, It is a pleasure to meet you all. I have been diagnosed with MG since 2014. I have been struggling...

new medication

Looking for info on MH patients that are using Ultomaris...I understand this is a new medication for MG and looks very promising....thoughts?...

MuSK MG

... ... anyone out there with MuSK MG? Hello, I have just been diagnosed with MuSk MG and am awaiting my first...

Thymus gland

Do i have to be removed even if it isn't bloated? I have a breathing disorder, and the doctor tells me that...

Plasma aphersis

Wondering if anyone knows. If getting 10treaments of plasma aphersis (didn’t work) am I losing any of protection from the Covid shots...

How do I manage this mysthania ?gravis

Hi Am ifeoma I started experiencing weakness in 2010 because I was pregnant I thought it was one of the symptoms of...

I was born in 1956 . There was something wrong with my muscles...my brother had it too...

We were tested for MS and other neurological diseases. We had very heavy eyelids and our eyes did not move. We were...

Diagnosis Eludes Us- So Frustrated

At 19 I noticed my daughter holding her chin up all of the time and she stopped singing around the house. She...

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