Waiting on lab results and not fully diagnosed...Today is my first day on this forum. I need some advice. I have been symptomatic since Janaury. I have seen every specialist known to man. We have ruled out...Reactions0reactionsComments4 replies
Active 3 days agoWhat is the most effective treatment for MG!...Got diagnosed 5 months ago and was started on 1 tablet of Pyridostigmine a day & now taking 4 tablets daily with 20mg of steroids which has given me...Reactions0reactionsComments1 repliesCoping
First Symptoms...How long did they persist before you were diagnosed? How long until you felt you possibly had something serious? - Jodi, Team Member...Reactions0reactionsComments11 repliesSymptomsDiagnosisAwareness
Still not diagnosed but Dr started me on mestinon........I have not officially been diagnosed. Waiting on labs. But because of symptoms, the Doctor started me on Mestinon....Reactions0reactionsComments8 replies
what is the best way to deal this?...newly diagnosed,what can I expect in the future?...Reactions0reactionsComments2 repliesCopingDiet & NutritionIntimacy & Relationships
How old were you when you were diagnosed with MG?...Add any other details you'd like to share!...Reactions0reactionsComments120 repliesDiagnosis
Ocular mg...I was just diagnosed with ocular mg.im talking pyridositigmine.does anyone get dizzy from it?...Reactions0reactionsComments24 replies
FeaturedDo You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?...Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried?...Reactions0reactionsComments126 repliesSeronegativeTreatmentDiagnosis
RUSK myasthenia gravis ...Just diagnosed recently. What meds are you on?...Reactions0reactionsComments2 replies
Severe hot flashes ...I was diagnosed at 19, had a thymectomy at age 20, tick every box on the symptoms list....Reactions0reactionsComments2 replies
Active 7 days agoMuscle Spasms...I was diagnosed in 1995 I had no mobility at all I take mestinon and Prednisone to stay stable....Reactions0reactionsComments2 replies
What to expect from MG...Hi everyone, I’m a 19 year old female and i’ve accidentally got diagnosed with MG, I got sent for a CT scan with contrast for my seizures and then...Reactions0reactionsComments9 repliesSymptomsTips & Advice
Early Undiagnosed Symptoms?...Further, my mother was diagnosed as having Parkinson's disease when she was in her early 40's....Reactions0reactionsComments1 repliesSymptoms
Ocular MG...I was diagnosed by a neuro opthamologist but my blood tests were negative....Reactions0reactionsComments6 replies
Pain with myasthenia ...I have recently been diagnosed with myasthenia, antibody musk. I will start treatment as soon as my insurance allows. I am having pain in my neck....Reactions0reactionsComments6 repliesMuscle Weakness
Being new in the community....My question being, how did you guys feel when you first got diagnosed? How did you feel about everything? - Fleur...Reactions0reactionsComments2 repliesCopingAutoimmune Diseases
Hypertension Medication ...Has anyone been diagnosed with hypertension. If so, what medication do you take, due to having Generalized Myasthenia Gravis. How is the medication....Reactions0reactionsComments6 replies
Self healed through Food!...I was diagnosed in 2014 due to a positive reaction to Mestonin. I couldn’t talk and walk up stairs....Reactions0reactionsComments8 replies
Can i have nicotine on imuran...Before i got diagnosed i was an big smoker but after i decided to switch to vaping becaus it’s a bit better....Reactions0reactionsComments2 repliesTips & Advice
Active 7 days ago3 Tips You Wish You Had When You Were First Diagnosed With Myasthenia Gravis?...Think back to when you were first diagnosed with Myasthenia gravis. What are 3 tips you wish you could go back in time and have given yourself?...Reactions0reactionsComments25 repliesTips & AdviceTreatmentNewly Diagnosed
