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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and...

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Definition of seronegative MG

Does a negative antibody test mean you dont have MG? I still have lots of symptoms and the Pyridostigmine really helped, but...

Active today

Is anyone experiencing syncopal( fainting) episodes?

I have Myasthenia Gravis, I'm 10 months post Thymectomy, currently on IVIG 2 days every other week waiting on a clinical trial...

Active yesterday

Do you and your doctor "get" each other?

If you could change one thing about the way you and your doctor talk to each other, what would it be? Do...

Active yesterday

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...

Active 3 days ago

slow down and take it easy, worrying will not help you only make you worry more

after 2 years ( age 71 right now) i had plenty of plans at retirement. Most of them are on hold, probably...

Active 3 days ago

Diagnosed-treated-3+ years/ Informed I was misdiagnosed

After being treated for double seronegative for 3+ years, I have now been referred to back to my hematologist for anemia issues...

Active 3 days ago

How do you experience breathing problems?

Hi, I was hoping you could share what breathing problems feel like for you. For me, it's mostly feeling a pressure on...

Active 3 days ago

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

Active 4 days ago

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

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