Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 4 days ago

How is mestinon supposed to help?

Hi all, recently been diagnosed with mg through achr positive blood tests. I've been put on 60mg mestinon 3x a day and...

Active 4 days ago

In remission

Hi there just to give the community an update on my condition. I was diagnosed with mg in 2020 and had a...

Active 4 days ago

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Active 4 days ago

Medication & Treatment Side Effects

Have you ever stopped a medication or treatment because of side effects? If so, did you switch to a different medication or...

Active 4 days ago

Has anybody heard of MG just dissapearing and no medications being taken or required not even Mestinon

MG just miraculously dissaperaing like remission...

Active 7 days ago

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

Featured

Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

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