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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 4 days ago

choose the right neurologist

I am going on 5 yrs with MG Occular. I have seen 5 doctors. My ophthalmologist ( the first to suggest MG...

Active 4 days ago

transistion from oral tabs to extended release -

just transitioned to ER tabs instead of oral but still 180mg a day. My lower lip is numb and difficulty ennunciating words...

Active 4 days ago

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice...

Active 5 days ago

How do you cope with fatigue?

Studies show that fatigue can have major effects in people with autoimmune diseases like MG....

Active 6 days ago

"Wrong" Diagnosis for Years?

I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists...

Active 8 days ago

When meds don't work

I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...

Featured

Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which...

Newbee found while in MG crisis ccu stay

Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...

MG Patient Registry

https://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...

Ocular MG

I have just been diagnosed with Ocular MG, effects my eyes (double vision) and balance. Anyone ever heard of this or has...

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