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Read conversations, start a discussion, and connect with others about myasthenia gravis.

red blotchy skin color after 5 days of ivig infusion

Did not have this symptom during the week of infusion, but today I am seeing this on my legs and arms. Any...

Acute MG Attacks

I have recently had my first MG acute attack. It started with weakness in my hands, which don't feel attached to my...

ivig infusion and back surgery

I start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days"...

Deep frustration and sadness after finding the love of my life

Hi all, my name is Lucienne, i,m a 57 year old woman from The Netherlands. I,m so depressed and sad that i...

MG with Shingles

Diagnosed over a year ago with Ocular which migrated to general MG around March of 2024. In March of this year i...

ultimaris - Anyone taking it ? How do you feel after

Hi i am due for my first infusion. What are the side effects ? Any idea ? can i go to work...

Has anyone here experienced Myasthenia Gravis or is currently managing it? What symptoms did you notice first, and what treatment or lifestyle...

Myasthenia Gravis is a rare autoimmune neuromuscular disorder that causes muscle weakness, often starting with drooping eyelids, double vision, or difficulty in...

Cellcept side effects

Hello, I’m in the UK and over here Cellcept is called Mycofenax. I ve just been put on this drug as I...

I feel horrible - maybe detoxing system ?

Hi everyone, Like the title said, I need advice and or opinions in regards to my recent journey with MG medicines. Been...

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years...

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