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Active 7 days ago

Do you honor Myasthenia Gravis Awareness Month?

June is Myasthenia Gravis Awareness Month. Do you do anything to honor this month? Share anything, even if it's just something very...

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

How do you experience breathing problems?

Hi, I was hoping you could share what breathing problems feel like for you. For me, it's mostly feeling a pressure on...

Do you and your doctor "get" each other?

If you could change one thing about the way you and your doctor talk to each other, what would it be? Do...

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...

Newly Diagnosed

I have had double vision for roughly 4 months. An Opthamologist ordered labs and diagnosed me with MG. What should I expect...

Leg Vibrations

Diagnosed with MG in 1989 and have had mild fluttering in my legs over the years. For the past year I have...

Positive Test Results Only Once

I started having MG symptoms in 2021. However, all my test results were negative for an entire year. Then, in 2022, I...

Driving

When do you realize you are a driving hazard because of double vision and exhaustion? I think I need too consider giving...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

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