Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Unusual symptom?

I was finally diagnosed with a muscle disease/disorder, non-specific, about 5 years ago after going to the neurologist for over 10 years...

Anyone taking Ultomiris?

I’ve had (2) IVIg treatments and will have one more next week. I will be starting Ultomiris in May and going forward...

Methotrexate

Is anyone currently taking Methotrexate please? This has now been prescribed for me as I was experiencing bad side effects from taking...

Vyvgart Side-Effects and Adverse Reactions

We understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it?...

What is Leg systoms

I was diagnosed with my Myasinthla Gravis about a month ago. My symptoms were trouble, swallowing problems breathing slurred talk. droopy eyelid...

How did you feel after IVIG

Hello, I just finished my first dose of IVIG. I’m curious how others felt after their first treatments and subsequent doses? I...

Good News!

I was called by a neurology department at st. Claire hospital. They had a cancellation that needed to be filled! I was...

How long before you were diagnosed?

Hello, I am newly diagnosed and new to this forum. I started having double vision & a droopy eyelid in mid February...

Just had 1st ivig infusion-any success stories?

Hello, I am newly diagnosed with MG (2 months ago), neuro put me on pyridostigmine right away. It took about 2 weeks...

Double vision

Diagnosed in 2024. I have no peripheral vision and have double vision always minimum leg cramps. What do people take for vision?...

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