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Read conversations, start a discussion, and connect with others about myasthenia gravis.

"Wrong" Diagnosis for Years?

I was Dx for MG last year. Yet, twice since 2008, I had extreme fatigue and was sent to 2 different Rheumatologists...

When meds don't work

I'm 51 years old and have GMG for 5 years. I was on Ultramiris for 4 years and and had no problems...

Newbee found while in MG crisis ccu stay

Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...

MG Patient Registry

https://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which...

Propel Clinical Trial

Wondering if anyone is participating in the Propel clinical trial and your results....

IVIG allergic reaction

Is anyone experiencing an itchy, bumpy rash on palms of hands and in between fingers following IVIG? Any info would be appreciated!...

Huperzine-A

I have found that Huperzine-A (a Chinese herb) was originally found to be of help with Alzheimer, has shown some value with...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...

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