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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Mestinon Reverse Effect

Hello all, I have been taking mestinon for 8 years and was very dependent on it. Just recently I have been having reverse effects from it. It actually causes MG...

MG Exacerbation after Antibiotics?

Hi everyone! Has anyone had an MG exacerbation after a course of antibiotics? If so, how long has it lasted? And what antibiotics were to blame? I have been in...

Heat and MG

I had a thymectomy to remove a thymoma back in April 2021 and have been in remission for nearly three years. I regularly use the steam room and sauna at...

Right sixth nerve palsy

Hello. I had a right sixth nerve palsy that resolved spontaneously within 2-3 weeks. Modulating ab showed increased activity. Other 2 abs were normal. I saw only two case reports...

Obesity Drugs

Hi to all! I’m 5’0” and weigh 185 pounds. A bit rotund here! My weight in impacting my breathing(COPD, sleep apnea), my spine(asking collapsing vertebra to carry this, leading to...

CBD and how it is good or bad for myasthenic patients.

With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...

How Long Have / Did You Experience Discomfort After Thymectomy?

It has been almost 2 years since my transsternal thymectomy. I had a good amount of pain afterward, toward my stomach, sides, and back. At my follow-up appointments, my scans...

Spouse has MG and Fibromyalgia

How are you handling a spouse with MG and Fibro? How are your spirits? I am frustrated and I know she is too. Tips?...

Thymectomy

Hi just to let the community know that since the thymectomy to remove a thymoma I have had three ct scans and I am pleased to say that all have...

Does anyone know of an opthamalogist who specializes in Ocular MG?

I have tried many Google searches but none come up. I present with MG- closed crossed eyes but my Single Fiber Test was normal so I don't have an MG...

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