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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Your Experience Terminating Being Under the Care of a Doctor

Many of us have had at least one healthcare professional that we quit going to see because we believed they didn't provide quality care, listen, be respectful, be thorough, educate...

Numbness and tingling in limbs

I have recently been diagnosed as having MG with MuSK. About 5 months ago I started feeling pain around my right elbow. My PCP diagnosed it as tennis elbow. About...

Surgery caused an MG crisis and Death (Throat stopped working)

My mom (74 yrs. old) recently passed away after being approved for a surgery to fix her broken arm. The anesthesia and surgery created enough stress that triggered a crisis...

Mestinon causing too frequent bowel movements.

Does anyone else have this problem and is there a work around? I am currently taking half of a 60 mg three times a day to moderate the side effects....

Droopy eyes

Does everyone have droopy eyes with. MG?...

Can MGnegative patient take VYTGARD

My doctor subscribed it for me and I am MG negative FDA only approved for MG positive...

Pretty sure I have MG

Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...

Starting My MG Journey

I was setting this down to help my own recollection, but I find I have a lot of questions, so maybe someone would like to comment on some of the...

Muscle Weakness

My dad is in the middle of his third MG crisis in 18 months, the latest has included ventilator for 12 days —the past few days (no longer in ICU...

Borderline achr antibodies

Hey, new girl here. Long story short my gp text the other day to say the achr antibodies have come back "borderline" raised (reference range where I am is 0.0-0.59)...

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