Possible misdiagnosis Twelve years ago I was diagnosed with MG after nearly 3 years of going from doctor to doctor trying to find one...reactions1replyDiagnosis
Congenital myasthenic syndromeI'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...reactions8replies
Prednisone for ocular MGMestinon helps, but I seemingly have to take a lot of it to make a big difference. I would like to hear...reactions7repliesOcular MG
ivig infusion and back surgeryI start IVIG Infusion on Monday 14, 2025. Five straight days then followed by "maintenance days" of IVIG. During the "maintenance days"...reactions5repliesSurgery
MRI scans/thymectomy in the 1980sHi, I have MG and was diagnosed with it in 1984 at the age of 15. I had a thymectomy in 1985...reactions1reply
FeaturedDoes Anything Help Your Double Vision And/or Droopy Eyes?Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses...reactions140repliesOcular MGDrivingVision
HRT and MGHello! I am in my mid 40's, and my MG has always been exacerbated 3 days before my cycle starts, I've never...reactions1replyGeneralized MG
Prednisone not for meI was not able to take Prednisone. We tried for a year and I was so sick that my doctor weaned me...reactions1reply
Does anyone else in your immediate family have MG? After a five-year struggle, I was finally diagnosed in 2018 as Seronagative. My journey through a long list of unexplained symptoms help...reactions2repliesFriends & FamilyNewly DiagnosedAutoimmune Diseases
Weight gain, anybody?I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and...reactions12repliesExerciseDiet & Nutrition