Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Are specific vaccinations safe with MG?

We have a new granddaughter and my son has expressed an interest that I get the new fall Covid vaccine and flu...

Active today

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Active today

What are your go-to home hacks for conserving energy with MG?

From using adaptive tools in the kitchen to reorganizing daily essentials so they’re within easy reach, we all develop our own strategies...

Active today

Feeling Overwhelmed

I have been diagnosed for 2 years now. On prednsione, mestonin and cellcept. gabapentin and nortriptyline, IVIG monthly. Leg fatigue during the...

Active today

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Active today

Congenital myasthenic syndrome

I'm a Brit in my mid-seventies living in Germany and have had CMG for the past 35 years. CMG means that I...

Active today

MG Anti Musk

My father's ventilator weaning is not happening since 45 days. Ivig just completed...

Active today

Side Effects From Pyridostigmine(Mestinon)

Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the...

Active 2 days ago

Just Diagnosed 9 days ago.any advice on bowel management /frequency /diet on Montinon?

I now wear depends as a precautionary measure, as i always have urgency,especially after a meal sometimes during sleep.i am tired of...

Active 3 days ago

Just Starting

I am just starting this journey with feeling huge weights holding my thigh muscles and upper arm muscles down, trouble catching my...

Categories

Select a category to find topics that interest you.