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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...

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Severe back pain during infusion

I have been taking Vyvgart for a year now and it has been working really well. However, during my last infusion, i...

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Diagnosed-treated-3+ years/ Informed I was misdiagnosed

After being treated for double seronegative for 3+ years, I have now been referred to back to my hematologist for anemia issues...

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Do you have problems swallowing?

Myasthenia gravis causes weakness of the swallowing muscles of many individuals, leading to problems involving choking, a terrifying experience, https://myasthenia-gravis.com/living/swallowing-speaking-symptoms, https://myasthenia-gravis.com/diet, and...

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Does Anything Help Your Double Vision And/or Droopy Eyes?

Do you have Myasthenia gravis symptoms of diplopia (double vision) or ptosis (drooping eye)? Has anything helped you? Medication, surgery, tape, glasses...

Active 3 days ago

Definition of seronegative MG

Does a negative antibody test mean you dont have MG? I still have lots of symptoms and the Pyridostigmine really helped, but...

Active 3 days ago

Is anyone experiencing syncopal( fainting) episodes?

I have Myasthenia Gravis, I'm 10 months post Thymectomy, currently on IVIG 2 days every other week waiting on a clinical trial...

Active 4 days ago

Do you and your doctor "get" each other?

If you could change one thing about the way you and your doctor talk to each other, what would it be? Do...

Active 4 days ago

Leg and Foot Cramping and Pain

Many individuals with Myasthenia gravis report having intensive leg/foot cramps and pain, most specifying this occurring predominately at night. Do you experience...

Active 5 days ago

slow down and take it easy, worrying will not help you only make you worry more

after 2 years ( age 71 right now) i had plenty of plans at retirement. Most of them are on hold, probably...

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