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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Medication side effects

Are you currently taking any medication to manage your MG symptoms? If so, which are you taking? How long have you been...

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

Is a wheelchair in my future?

I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...

Weight gain, anybody?

I'm becoming frantic over the fact that I've gained about 15 pounds (~7 kg) since I was diagnosed in January 2022 and...

What came after mestinon & steroids for you?

Did you move from pyridostigmine (60mg) and Prednisone (30mg or so) right to IVIG as your next treatment? Or if not, what...

Were you in remission to then have your MG symptoms return?

Have you been treated for Myasthenia gravis and entered a period of remission, but unfortunately, months or years later, your symptoms returned?...

New member, I suspect MG - please confirm which bloodtest I need?

Dear all I am a new member here. I have had MG symptoms for well over 14 years now but its never...

In remission

I was diagnosed with in early 2020 and had a successful thymectomy in 2021. I was initially given prednisone but had severe...

Problems

I am nearly eighty and have a secondary illness I have to take medication for this 2nd illness which causes constipation etc...

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