Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Do you honor Myasthenia Gravis Awareness Month?

June is Myasthenia Gravis Awareness Month. Do you do anything to honor this month? Share anything, even if it's just something very...

Do You Have a Caregiver?

Do you have a caregiver? Is your caregiver someone you hired or a loved one? What has been your experience? Any advice...

Suspected MG, negative tests so far, SFEMG pending

I've been under treatment since a month and a halve Experienced first symptoms, like fatigue and problems reading things up close after...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Has anyone used imaavy infusion

I am 78. I have had MG since 1998. I presently take prednisone and IVIG infusion. I have taken prednisone since 2000...

Anyone familiar with autonomic nervous system dysfunction in MG?

I've had myasthenia gravis since '97 mainly affecting eye muscles but in the past swallowing and speech has been affected occasionally especially...

Confidence in your treatment regimen?

How easily or difficult is it for you to have faith and confidence in your treatment regimen? Has this changed over time?...

looking for a new Boston MG Doctor.

I am looking for a new Neurologist for MG, in Boston. Experienced, good bed side manner, who has appointments in the reasonable...

Categories

Select a category to find topics that interest you.