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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Cogan's lid twitch

I have tested negative for the antibodies, but I think I still might have the ocular version. I did the coggins eyelid twitch test at home and it looks positive...

Side Effects From Pyridostigmine(Mestinon)

Have you experienced any side effects from the MG treatment Pyridostigmine, commonly called Mestinon? This article on our website, https://myasthenia-gravis.com/treatment/ache-inhibitor, discusses the side effects of these kinds of medications, acetylcholinesterase...

Breathing problems

I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've been symptomatic for a few years, but all...

Reassurance on blood test results

Hello, Just reaching out for some reassurance I've waited 6 months just to get my blood test results and I just want to ask if 8 nmol/L is positive for...

Advocating and making changes in the diagnosis and treatment of Myasthenia Gravis

I'm feeling like advocating more for Myasthenia Gravis Awareness and Understanding. Without our contributions to research, community outreach. Educating others and the medical field of what our life is like...

Severity of symptoms

My husband was experiencing muscle weakness in his legs for several years - needing to frequently "rest" between activities. We talked to several doctors with no real suggestions. Last year...

problem with difficulty urinating

good evening, I have been diagnosed with myasthenia gravis since 2009, for the last year I have difficulty urinating and I have a small flow, I am 32 years old...

Intermittent Antibodies and Negative SFEMG

Good Morning, My name is Eddie and I've been in an odd place of limbo for many years. I was diagnosed by a local neuro back in 2007 with MG...

General questions

I was diagnosed years ago, as the years have past I could do less & less without losing my breathe. I'm on IVIG twice a week every other week. My...

Do You Have MuSK or LRP4 Antibodies?

Do you have MuSK or LRP4 antibodies? "Most people with MG have problems with acetylcholine receptors (AChR). However, other antibodies may cause MG, such as muscle-specific kinase (MuSK) and low-density...

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