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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Newbee found while in MG crisis ccu stay

Help! Just had double bam…MG dx due to crisis. Very close to intubation l. Had 5 IVIG roids wtc. Caveat I am...

MG Patient Registry

https://myasthenia.org/living-with-mg/after-your-diagnosis/mg-patient-registry/...

Ocular MG

I have just been diagnosed with Ocular MG, effects my eyes (double vision) and balance. Anyone ever heard of this or has...

Ocular MG? Which Treatment Has Worked Best for You?

Do you have ocular Myasthenia gravis or at one point did before it turned generalized? What treatment, if any, has helped you...

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

Tips for breathing

Most of my MG symptoms are under control, I do get flares sometimes though. However today I'm having some breathing issues, which...

Propel Clinical Trial

Wondering if anyone is participating in the Propel clinical trial and your results....

Has anyone tried Ultomiris ?

Ultomiris has been advertised on TV as a treatment for gMG. I have tried IVIG and Vyvgart Hytrulo along with Mestinon and...

IVIG allergic reaction

Is anyone experiencing an itchy, bumpy rash on palms of hands and in between fingers following IVIG? Any info would be appreciated!...

Recently diagnosed

I have been recently diagnosed with mg after 15 years of wondering why I have a wonky eye. When I say A...

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