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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

New life with MG

I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...

Seronegative diagnosis and two rare genetic diseases

I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...

Seronegative MG

Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...

New diagnosed

I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start...

What causes Myasthenia gravis

When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...

Featured

Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...

Prevnar 20

Anyone get the prevnar 20 vaccine? Any problems?? Im scheduled for one at 1:00 pm today abd nervous. Help...

Difficulty swallowing while sleeping

I have difficulty every night swallowing phlegm approx 4 hours every night after I have fallen asleep. I wake up, drink a lot of water and go back to sleep...

blepharoptosis surgery for Ptosis

Hi, i am diagnosed with ocular myasthenia gravis and was given mestinon to help with my droppy eyelid. Aside from the medications, i am just wondering if anyone go for...

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