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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Anyone else have MG and idiopathic transverse myelitis

I've had idiopathic transverse myelitis (TM) for the past several years affecting the lower half of my body. Last month I was diagnosed with seropositive MG after developing weak lip...

Could I have this disease?

I'm almost 56 years old and lately I have little to no energy, I've always been energetic some shortness of breath should I be concerned and should I try to...

Does a Negative ANA mean a negative for MG or are the specific antibody tests different.

Hello, I have been having crazy and life changing symptoms within a week after my vaccine in 2021 ( Pfizer). Blurred/double vision Eyelid droop-steroids help Weakness Tremors Cognitively I feel...

Not reacting to treatments

Hi there im a caretaker and my spouse has MG 3 weeks ago he was not feeling good since the new IV treatment was not lasting him ( vyvgard) And...

New life with MG

I’m just starting my journey with MG. I’m scared and concerned. People are beginning to notice that there's something wrong. My eyes are sagging, they drift outwards. I have trouble...

Seronegative diagnosis and two rare genetic diseases

I’ve tried posting as a status and it it’s won’t go. It’s been a really crappy couple of months. I’m so over wheelmen. My genetic test for mitochondrial myopathy came...

Seronegative MG

Hello! I was diagnosed in March 2020. I am a 30 year old female...I'll give you a little backstory..heads up it will be long! To start- I have never had...

New diagnosed

I just diagnosed s week and just got the hospital on Prednisone hope to start mestinon tomorrow? Need something for tongue and blurry vision! Does it take awhile to start...

What causes Myasthenia gravis

When I was in the military I was in contact with JP-5 fuel frequently for 4 years. It is said by the department of health that it affects the nervous...

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Vyvgart

Did anyone get the new Vyvart infusion yet? My dr wants me try to try it but had flair after 13 yrs with no symptoms until Feb of this year...

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