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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come out. I've been using catheters on and off...

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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which I still have). I had an almost cancerous...

Side effects of Mestinon

I have a colostomy. Mestinon causes me to have bloating, pressure and abdominal pain. I am concerned about continuing to use Mestinon. My doctor doesn’t seem to have any other...

Travel Considerations

My best friend is 87 y.o. He wants me to do a cruise with him on a 160 passenger ship to Antartica. I have been diagnosed with MG since last...

Advice/comments for new MG diagnosis and possible treatments

This is quite long, but if you have time and can share any thoughts, I would be very appreciative. New MG diagnosis and would like some opinions on doctor's advice...

Muscle cramping

I haven't been diagnosed with MG but my doctors and I are believe it is likely causing my symptoms, notably double vision and extreme muscle fatigue that varies throughout the...

double vision

For dealing with MY Ptosis based, or caused, double vision, I initially found the closing of one eye gave me clear vision in the other eye. The problem with this...

Vyvgart Hytrulo journey

I want to start a thread to post my experience with Vyvgart Hytrulo as a treatment for gMG. It is not easy to get an understanding of what is required...

Needing help understanding Test Results

Hi everyone, Recently had a MG panel with reflex to Musk through Quest and I have a specific question about AChr modulating antibody. My result was 22. Reference range was...

Do positive blood tests later show no sign of gMG?

My neurologist keeps saying that now that my antibody blood test shows no antibodies, that she is stopping Vyvgart. This is after 3 positive blood tests that kept getting worse...

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