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Read conversations, start a discussion, and connect with others about myasthenia gravis.

FeaturedActive 6 days ago

How do you balance exercise and MG?

We all know exercise is a key part of being/getting healthy, but overexertion is also a key part to triggering MG symptoms. Is there any tips or hacks to balancing...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Harder to hold head up

I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my neck or left shoulder blade area after spending...

How do caregivers know the treatment provided by physicians is the best and most correct?

My husband of 53 years passed away from MG after doctors fumbled around attempting to find ways to treat this disease, putting him through months of in-and-out of the hospital...

Mold Toxicity/Exposure and MG

Are you dealing with MG and suspect you’ve been exposed to mold, or have you had confirmed mold exposure in the past? Mold exposure or toxicity can lead to a...

MG Crisis-What Triggered Yours?

Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...

What Time of the Year Is Best and Worst for Your MG?

Myasthenia gravis can be triggered uniquely for each individual that lives with it. The time of the year may affect how many MG symptoms and severeness you must deal with...

Muscle Spasms with and without Pyridostigmine (Mestinon)

Have you taken mestinon and experienced muscle spasms? Did your doctor have you suspend the use of the treatment? Have you noticed muscle spasms even without being on mestinon? Muscle...

Could Quercetin and Zinc supplements cause an overactive autoimmune response that looks like Myasthenia Gravis?

My MG symptoms started after covid, but also after I began taking Quercetin and Zinc supplements....

Switching MG Treatment Brands

Have you had to switch MG treatment brands before, possibly due to insurance or shortages? Did this result in any adverse reactions or problems?...

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