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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active today

Definition of seronegative MG

Does a negative antibody test mean you dont have MG? I still have lots of symptoms and the Pyridostigmine really helped, but...

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Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

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How do you experience breathing problems?

Hi, I was hoping you could share what breathing problems feel like for you. For me, it's mostly feeling a pressure on...

Active yesterday

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Active 3 days ago

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

Active 3 days ago

New treatment (experimental?) Rystiggo

rozanolixizumab (brand name RYSTIGGO) Has anyone had any experience with this? I’m not questioning the validity of the trial, simply any after...

Active 4 days ago

Seronegative all symptoms/all negative BE and EMG/RNS

Hi everyone, I am new here and also new to myasthenia gravis. I have all negative bloodwork and a negative EMG/RNS. The...

Active 5 days ago

What questions do you wish your neurologist would ask?

When MG patients walk into a neurologist's office, they often hope the doctor will look past the MRI scans and reflex hammers...

Active 6 days ago

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Active 7 days ago

Headaches or migraines as a primary or persistent/main symptom

Hi, just wanted to know if there were many of you with headaches or migraines as a main symptom. As myasthenia is...

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