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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Bedridden or Limited-To-Home? What occupies you?

Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...

Awful problems after covid jab

Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

Sorting out MG and non MG symptoms - balance vs. weakness

context: my diagnosis is only tentative seronegative - but I have had classic MG-type symptoms for over 20 years with no meds prescribed so far. In an effort to better...

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...

CBD and how it is good or bad for myasthenic patients.

With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...

Exhaustion?

Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...

Pretty sure I have MG

Hello! I have a long and complicated history so I won’t get too detailed with it. I have been trying to get a diagnosis for my muscle weakness and mobility...

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