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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Muscles

Hi I'm new here and waiting for blood results achr & musk. Can anyone help,I have graves disease,TED and pernicious anemia. My eye Dr requested blood tests as have one...

Managing weakness when waking up

Hi everyone, I am new to this forum/website and I was only formally diagnosed with MG in November 2023. I am 25 and based in the UK. I have comorbid...

Bedridden or Limited-To-Home? What occupies you?

Do your myasthenia gravis symptoms or the combination with another condition currently have you bedridden or limited to home activities? What entertains you? Let's throw around ideas or favorites to...

Awful problems after covid jab

Smell in the nose. Occasionally hot and sweaty problems with eyes could that be the vaccine or covid itself...

Tapering Off Mestinon?

I was on the phone with my PCP who told me that skipping a dose of Mestinon can cause my weakness symptoms to get worse even if I don't have...

Is anyone else on azathioprine?

I have been taking azathioprine now for several months, but it does not seem to be helping much for muscle weakness and fatigue. My neurology PA said it can take...

CBD and how it is good or bad for myasthenic patients.

With sore muscles I would like to use CBD cream. I am concerned that the weak muscles might not respond well. At the same time would it be a real...

Exhaustion?

Hi, I'm not (yet?) diagnosed with MG, but I have a strong suspicion, and my doctor does too and is currently doing tests to check on it. Usually, my symptoms...

Neck Pain

Do you have Myasthenia gravis and experience neck pain? https://myasthenia-gravis.com/clinical/pain What does the sensation feel like, and when do you notice it? Have you found any remedies to help? As...

Share some medications that have been proved to be useful for CMS patients.

Hii everyone! I have a neurological disorder called congenital myasthenic syndrome (CMS). Despite trying various medications, none of them have been effective. My neurologist has suggested ephedrine treatment, which has...

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