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Read conversations, start a discussion, and connect with others about myasthenia gravis.

CAR T Cell therapy or UCAR T cell therapy

My family member has been diagnosed with MG. It's been refractory to the first 4 infusions. He has the opportunity to enter...

Ocular MG

I was just diagnosed with MG my symptoms are double vision and my eyeballs going to the left. My eyeball literally goes...

What about portable oxygen if I have a breathing episode?

I was wondering if there is some kind of canned oxygen like athletes use that I can use when I travel, and...

Branded medication

Hello, is there any documentation regarding the effects of different drug brands in myasthenia patients?...

Characteristics and Events Comprising Your Highs and Lows Exercising with MG

What do your highs and lows look like or what is characteristic of these moments when attempting any exercise or physical activity...

Severe Back Pain

I am considering going to a physiatrist to get a steroid injection in my spine. Has anyone had any such injections and...

I need tips for managing the diarahra

I was diagnosed with MG a month ago and because of severe stomach cramps - symptoms of the pyridostigmine - I was...

Harder to hold head up

I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Fatigue/exhaustion in arms and legs

I was diagnosed in December 2022 with MG. It seems that some of the most common and bothersome symptoms I have experienced...

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