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Read conversations, start a discussion, and connect with others about myasthenia gravis.

Neurologist concerns? I have them.

I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision perplexed the best of them til my ophthalmologist...

Myasthenia Gravis and Cardiovascular Medication

Myasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and heart arrhythmias). Beta-blockers, calcium channel blockers, and statins...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems to me treatment should have some measurable objectives...

Harder to hold head up

I don't know if this is just a temporary thing (as in bad sleep position), but lately I get soreness in my neck or left shoulder blade area after spending...

Unexplained Symptoms that are Not Characteristic MG Symptoms?

What unexplained symptoms do you have that are not characteristic MG symptoms?...

Immunizations and MG

Has anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot. Covid the worst....

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about your experiences. Any stories would be appreciated!...

MG Crisis-What Triggered Yours?

Have you had an MG crisis (https://myasthenia-gravis.com/crisis)? If yes, do you have an idea of what triggered it?...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If so, what do you do to manage these...

What’s something you wish your doctor knew about living with MG?

It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are the top three things that you wish your...

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