Active 3 days agoshoes and bootsDoes anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of...reactions6repliesAssistive Devices
Active 3 days agoHearing AidsI have vision problems with MG, now I find out it is the reason I need Hearing Aids....reactions2repliesAssistive Devices
Active 3 days agoIs a wheelchair in my future?I am 75 with a moderately controlled case of gMG. I can still walk around the house. I can go outside and...reactions7repliesAssistive Devices
Active 6 days agoWhat’s something you wish your doctor knew about living with MG?It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are...reactionsrepliesTips & AdviceSymptomsHealthcare Team
Active 6 days agoCold weatherDoes cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If...reactions12repliesTips & AdviceSymptoms
Active 6 days agoHave you experienced losing your voice?Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about...reactions4repliesSymptomsNewly DiagnosedCoping
Active 6 days agoImmunizations and MGHas anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot...reactions20repliesSymptoms
Active 6 days agoDo you have treatment goals?Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...reactions6repliesTreatmentSymptomsGeneralized MG
Active 6 days agoMyasthenia Gravis and Cardiovascular MedicationMyasthenia gravis may pose a risk to patients using cardiovascular medications to treat heart conditions (coronary artery disease, hypertension, high cholesterol, and...reactions20repliesTreatmentSymptomsNewly Diagnosed
Active 6 days agoNeurologist concerns? I have them.I'm frustrated. I was diagnosed with MG 2 years ago when I was beginning a crisis. My eye drooping and double vision...reactions8repliesGeneralized MGMuscle WeaknessSymptoms