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Forums

Read conversations, start a discussion, and connect with others about myasthenia gravis.

Active 5 days ago

Breathing problems

I'm a 47 year old male and I was diagnosed with the dok7 variant of congenital myasthenia about a year ago. I've...

Active 5 days ago

Unusual presentation of symptoms

Hello I wanted to share my unique story in hopes of making sense of a mystery. My doctor after about a month...

Active 5 days ago

My Experience with Vyvgart

I am a male 66 years old and I am currently receiving Vyvgart on a 4 weeks on 4 weeks off cycle...

Active 5 days ago

shoes and boots

Does anyone have good , lightweight shoes with great traction,not super expensive? Boots are also an issue. Have found zip, kind of...

Active 5 days ago

Hearing Aids

I have vision problems with MG, now I find out it is the reason I need Hearing Aids....

What’s something you wish your doctor knew about living with MG?

It’s often difficult to express our challenges in the short appointments that we have to meet with a medical professionals. What are...

Cold weather

Does cold weather impact your myasthenia gravis symptoms? Do things like fatigue, muscle cramping/weakness get worse when the weather is colder? If...

Have you experienced losing your voice?

Have you or anyone you know with MG ever experienced losing their voice, also known as aphonia? I'm curious to hear about...

Immunizations and MG

Has anyone noticed that Immunizations make their MG symptoms worse. My OMG has seemed worse after a Shingles, Flu and Covid shot...

Do you have treatment goals?

Do you and your neurologist have measurable treatment goals? I know not everyone does, but because MG is not curable, it seems...

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