Neonatal MG and precautions taken by birth team and throughout pregnancyFor those who have experienced the unique journey of giving birth while managing MG, could you share the precautions, if any, that your birth team took for the potential of...Reactions0reactionsComments0 repliesAwarenessTips & AdviceTreatment
Vyvgart Side-Effects and Adverse ReactionsWe understand that using Vyvgart (Efgartigimod alfa) can sometimes come with side effects. Could you share any experiences you've had with it? Did it lead to your doctor ordering you...Reactions0reactionsComments0 repliesTreatmentSide EffectsAwareness
Has anyone's doctors suggested these?Hi all, recently my MG team have started bringing up a couple of things/ideas and I wondered if anyone had any experience with any of these. One was a temporary...Reactions0reactionsComments1 repliesTreatment
Unsuccessful Prednisone TaperHas your doctor directed you to taper your prednisone, and your body rejected the withdrawal? --- At what point in the taper process did your body start showing signs of...Reactions0reactionsComments2 repliesTreatmentAwarenessNewly Diagnosed
Myasthenia gravis and adverse reaction to the meningococcal vaccine?Do you have Myasthenia gravis and had an adverse reaction to the meningococcal vaccine required before starting the MG treatments Ultomiris, Rystiggo, Zilbrysq, and Soliris? It's crucial to know that...Reactions0reactionsComments0 repliesTreatmentAwarenessRefractory MG
Zilbrysq (Zilucoplan) users and past users, how has your experience been with Zilbrysq? Hi there, fellow Zilbrysq (Zilucoplan) users and past users! How has your experience been with Zilbrysq? Did you notice improvement with zilbrysq? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rystiggo (Rozanolixizumab-noli) users and past users, how has your experience been with Rystiggo? Hi there, fellow Rystiggo (Rozanolixizumab-noli) users and past users! How has your experience been with Rystiggo? Did you notice improvement with rystiggo? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users, how has your experience been with Vyvgart Hytrulo? Hi there, fellow Vyvgart Hytrulo (Efgartigimod alfa and hyaluronidase-qvfc) users and past users! How has your experience been with Vyvgart Hytrulo? Did you notice improvement with vyvgart hytrulo? If so...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Rituxan (Rituximab) users and past users, how has your experience been with Rituxan? Hi there, fellow Rituxan (Rituximab) users and past users! How has your experience been with Rituxan? Did you notice improvement with Rituxan? If so, how long did it take to...Reactions0reactionsComments0 repliesRefractory MGTreatmentTips & Advice
Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Hi there, fellow Ultomiris (Ravulizumab-cwvz) users and past users! How has your experience been with Ultomiris? Did you notice improvement with Ultomiris? If so, how long did it take to...Reactions0reactionsComments0 repliesTreatmentRefractory MGTips & Advice