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Read conversations, start a discussion, and connect with others about myasthenia gravis.

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

Drroling

Has anyone else have problems with drooling. I've encountered so many embarrassing situations where if I'm bending my upper trunk over and...

slow down and take it easy, worrying will not help you only make you worry more

after 2 years ( age 71 right now) i had plenty of plans at retirement. Most of them are on hold, probably...

slurring of speech

My husband was getting infusions and all of a sudden they switched him to a different med and in a few days...

Severe back pain during infusion

I have been taking Vyvgart for a year now and it has been working really well. However, during my last infusion, i...

Diagnosed-treated-3+ years/ Informed I was misdiagnosed

After being treated for double seronegative for 3+ years, I have now been referred to back to my hematologist for anemia issues...

Is anyone experiencing syncopal( fainting) episodes?

I have Myasthenia Gravis, I'm 10 months post Thymectomy, currently on IVIG 2 days every other week waiting on a clinical trial...

anti-musk positive on ELISA, negative on CBA

hi folks, i’m a new member of a club i wasn’t expecting to join. i’m in the middle of the diagnostic odyssey...

How is mestinon supposed to help?

Hi all, recently been diagnosed with mg through achr positive blood tests. I've been put on 60mg mestinon 3x a day and...

In remission

Hi there just to give the community an update on my condition. I was diagnosed with mg in 2020 and had a...

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