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Read conversations, start a discussion, and connect with others about myasthenia gravis.

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Unusual MG Symptoms?

Hi MGers, hope your all coping ok. I was diagnosed with MG 2 years ago after waking up with double vision (which...

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Do You Have Seronegative Myasthenia Gravis? What Treatment Has Improved Your Symptoms Best?

Are you diagnosed with seronegative MG? Which treatments have you been approved for? Which have you tried? Which form of treatment offered...

Muscle and neck pain

Does anyone elsr suffer from muscle and neck pain? I feel the weakness in limbs but the pain really bothers me....

How do you experience breathing problems?

Hi, I was hoping you could share what breathing problems feel like for you. For me, it's mostly feeling a pressure on...

Communicating about your myasthenia gravis

When you encounter a friend or associate who is not familiar with myasthenia gravis, how do you (simply but accurately) explain the...

Do you honor Myasthenia Gravis Awareness Month?

June is Myasthenia Gravis Awareness Month. Do you do anything to honor this month? Share anything, even if it's just something very...

What was the first treatment your doctor prescribed for MG?

Tell us how it worked for you. Did treatment help reduce symptoms? Did it bring any unexpected side effects? Your insight can...

How Do You Cope With Hot Temperatures?

Summer is almost here. Does the heat worsen your Myasthenia gravis symptoms? Which ones? https://myasthenia-gravis.com/living/heat How often are you outdoors in the...

Does anyone else have bowel/bladder issues with MG?

Ever since I've been diagnosed with MG, I have developed horrible bowel and bladder issues where nothing seems to want to come...

Has anyone used imaavy infusion

I am 78. I have had MG since 1998. I presently take prednisone and IVIG infusion. I have taken prednisone since 2000...

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